An Interview With Leah Zelaya, a Muscular Dystrophy Association 2023 national ambassador

Episode 78,   May 17, 2023, 05:47 PM

Episode image

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Leah Zelaya, a 2023 national ambassador of the Muscular Dystrophy Association. The 15-year-old aspiring actress from Brooklyn, New York, has an ultra-rare form of spinal muscular atrophy (SMA) known as scapulopereneal SMA.