An interview with Annie Kennedy, head of policy, advocacy, and patient engagement at the EveryLife Foundation for Rare Diseases
Episode 44, Aug 21, 2022, 02:04 PM
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Annie Kennedy, head of policy, advocacy, and patient engagement at the EveryLife Foundation for Rare Diseases. This Washington, DC-based nonprofit focuses on eliminating the diagnostic odyssey for rare disease, promoting regulations that speed up therapeutic development, and improving access to approved rare-disease therapies.