Hypertrophic Olivary Degeneration

On today's show we are speaking with Christina Coates about Hypertrophic olivary degeneration (HOD) a rare neurological condition caused by degeneration in the brain stem, the structure that connects the brain to the spinal cord.  Signs and symptoms include palatal tremors, lack of movement coordination (ataxia), Holmes tremor, vision problems, muscle weakness, and gait impairment, along with an MRI showing enlargement (hypertrophy) of the inferior olivary nucleus. (CREDITS: NORD)

In 2017, Christina was diagnosed with a small Cavernous Malformation with a previous hemorrhage in her cerebellum. In 2021, she had a craniotomy to remove the malformation, and developed HOD on her medulla. Her symptoms began a few months after the Cavernoma resection. Creating HODA is a passion project for Christina, with the hope of replicating the success of The Angioma Alliance. Christina has worked in Accounting and Finance for her entire career and enjoys her volunteer work with the Arizona chapter of the Angioma Alliance. Christina relishes the opportunities she has to attend and support the Arizona Cardinals, reading, and outdoors activities as her symptoms permit.