#50 - Roundtable Discussion - January 2020
Jan 21, 2020, 12:00 AM
In episode 50, hosts Kevin Schaefer and Michael Morale discuss updates on Roche and Genentech’s experimental therapy risdiplam. Now that this drug is under FDA-approval, we answer questions regarding its potential cost, and what kind of impact it will have on the SMA community.
They also talk about two of their recent columns from the main site. The first is about media representation of people with disabilities; and the second, written by parent columnist Michael Casten, is about working through life’s frustrations.
Listen here, and share your thoughts in our forums.
They also talk about two of their recent columns from the main site. The first is about media representation of people with disabilities; and the second, written by parent columnist Michael Casten, is about working through life’s frustrations.
Listen here, and share your thoughts in our forums.
Links:
-News Story: https://smanewstoday.com/2020/01/15/roche-starts-global-early-access-program-for-sma-therapy-risdiplam-in-europe/
-Kevin’s Column: https://smanewstoday.com/2020/01/14/media-disability-representation-storytelling-comics/
-Michael Casten’s Column: https://smanewstoday.com/2020/01/15/frustrations-life-dog/